WDAP

WELFARE OF DIFFERENTLY ABLED PERSONS (WDAP)

WDAP

Establishment of Model Rehab Centre for Duchenne Muscular Dystrophy

We have received the GO from Welfare of Differently Abled persons (DAP2.1) Department on 15.09.2014.We conducted a series of meetings with our consulting physiatrist to decide on the rehabilitation equipments necessary for children affected with Duchenne Muscular Dystrophy.

MDCRC’s physiotherapist and Research Associate visited and obtained views from physiotherapy departments from four established rehabilitation departments in various city hospitals on the equipments and manufacturers. A total of 159 patients were registered with us with Duchenne/Becker Muscular Dystrophy from Coimbatore district. The inauguration of the rehab centre at MDCRC was on November  15, 2014 which was followed by several meetings and regular rehab sessions for the children.

Rehab Meetings: Several Rehab meetings were held to coordinate with the patients to bring them together with day wise attendance to bring all the children to the rehab centre on a weekly basis. The commutation was done free of cost for the children. MDCRC ambulance would pick and drop the children at the door step.   Every child was given physiotherapy at least once a week.

Rehab sessions:   Apart for exercise sessions the physiatrist and physiotherapist identified the needs of the children for orthotic devices and wheelchairs. The funding allotted for orthotic devices was used to distribute ankle knee splints, bilateral knee ankle night splints, bilateral foot drop splint, spinal braces, pelvic band, bilateral below knee splints and wheelchairs.

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WHY

Public Health to us at MDCRC is about the community at large. The health of the community at different levels and when seen through different perspectives becomes a subject which is complete, holistic and is a melting pot for a plethora of technical disciplines. At MDCRC we do align with a goal of working for community health by working on modular projects related to Women and Child health, disease prevention, Health informatics, Community building and its associated research, Water resources, Arts, Indic Sciences, Cultural issues which are relevant to the contemporary generation. The style which we adopt is to focus on totally neglected aspects and form a working model towards a better situation. The need for this approach is to bring back the glory of humanity in general and which percolates to a healthier India.

The disorders in current focus are Orphan disorders, meaning disorders whose numbers are said to be less (in the Western diaspora) which neither doesn’t majorly impact the community’s currently used health metric nor does it provide a base for extensive drug research and its production. This view is only true until the numbers are low and also the way we look at Public health in general. There had been no concerted efforts in the domain of Orphan disorders in India. Mission of ours then, was to bring the science, the services pertaining to a particular problem statement and which thereby gives rise to an evolution of a model. This forges a way of approaching Health from a community standpoint thereby offering an impactful experience to all stake-holders. This is where the core culture MDCRC comes in where we believe that in Public Health domain in particular, the science and the associated services need to reach mankind at large without a number bias or number crunching.

With a background in Biochemistry and Genetics, Dr. Lakshmi, in 2006 had started working on genetic disorders with specific emphasis on community building.

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