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HEALTH eVILLAGE

Donato Tramuto, the Chairman and CEO of Physicians Interactive and the Founder of Health eVillages, presented two awards for healthcare programs in India and announced that Health eVillages is committed to expanding its efforts in India. The awards were made during Health 2.0 India’s “Simply Lead” conference at Bangalore’s CMR Institute of Technology, where Tramuto was also asked to provide closing remarks.

Tramuto announced two grants from Health eVillages during the conference, which focuses on rebooting and reframing leadership in India for the needs of 21st Century healthcare. The awards were presented to Dr. B.R. Lakshmi for her efforts to eradicate Duchenne Muscular Dystrophy (DMD) in the country, and to Kid Powered Media for its work on social issues faced by street, slum and working children in India.

Followed by the award Dr. B.R.Lakshmi and Tramuto came with collaboration on pilot project to create the awareness about the orphan disorders, viz Duchenne Muscular Dystrophy (DMD) and Spinal Muscular Atrophy (SMA) among the rural people through Angnwadi’s by using the technology.

Under the ICDS (Integrated Child Development Service Scheme), one trained person is allotted to a population of 1000, to bridge the gap between the person and organized healthcare, and to focus on the health and educational needs of children aged 0-6 years. This person is the Anganwadi worker. Their services also include the health and nutrition of pregnant women, nursing mothers, and adolescent girls. Today in India, about 2 million anganwadi workers are reaching out to a population of 70 million women, children and sick people, helping them become and stay healthy. Anganwadi workers are the most important and oft-ignored essential link of Indian healthcare.
In Coimbatore district, there are 14 blocks, 46 PHC (primary health centres) and 328 HSC (health sub centre). In these blocks, we have 1688 Anganwadis working under ICDS for 854489 populations in the rural places.

Usually we explain with the aid of PowerPoint presentations and videos in laptops during the trainings. In this pilot project, we used the iPads and mini projectors for training. During the short visual interaction we gave them awareness about this lethal genetic disorder and quick tips to identify the suspected cases of children with DMD/SMA related videos. This effect would further strengthen our goal to not leave any kid with DMD/SMA unidentified. The trainees were provided with the pre and post questionnaires which will help us for betterment of the project further. We successfully completed the training over all the given districted within the stipulated time period.

WHY

Public Health to us at MDCRC is about the community at large. The health of the community at different levels and when seen through different perspectives becomes a subject which is complete, holistic and is a melting pot for a plethora of technical disciplines. At MDCRC we do align with a goal of working for community health by working on modular projects related to Women and Child health, disease prevention, Health informatics, Community building and its associated research, Water resources, Arts, Indic Sciences, Cultural issues which are relevant to the contemporary generation. The style which we adopt is to focus on totally neglected aspects and form a working model towards a better situation. The need for this approach is to bring back the glory of humanity in general and which percolates to a healthier India.

The disorders in current focus are Orphan disorders, meaning disorders whose numbers are said to be less (in the Western diaspora) which neither doesn’t majorly impact the community’s currently used health metric nor does it provide a base for extensive drug research and its production. This view is only true until the numbers are low and also the way we look at Public health in general. There had been no concerted efforts in the domain of Orphan disorders in India. Mission of ours then, was to bring the science, the services pertaining to a particular problem statement and which thereby gives rise to an evolution of a model. This forges a way of approaching Health from a community standpoint thereby offering an impactful experience to all stake-holders. This is where the core culture MDCRC comes in where we believe that in Public Health domain in particular, the science and the associated services need to reach mankind at large without a number bias or number crunching.

With a background in Biochemistry and Genetics, Dr. Lakshmi, in 2006 had started working on genetic disorders with specific emphasis on community building.

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