IIT

Indian Institute of Technology, Madras

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MDCRC has always been on the look out for the best it can offer its patients and has no boundaries to tie up or collaborate with any organization to get the best for the Duchenne Children. In this regard, a ray of hope flickered when the students of IIT Madras, Department of Mechanical Engineering were working with customized wheel chairs. The project was initiated under the able guidance of Dr. Sujata, Associate Professor, Dept. of Mechanical Engineering at IIT who is also a member of our technical board at MDCRC. She along with her research associates have designed a standing wheelchair. The design and fabrication of self-operated standing wheel chair is very special as it helps the disabled persons to stand up with minimal effort. Dynamical modelling and principles of mechanism design is used to develop novel standing wheel chair, which has made the dream of many physically challenged people happy. The team at IIT is designing several more of these customized standing wheel chairs based on the needs of the disorder.
At MDCRC, several of the Duchenne kids who turn non ambulant by their mid teens would benefit highly with this model felt Dr. Lakshmi, the Director of MDCRC which led to a collaborative work on the above. Few meetings with the engineers at IIT along with the physiatrist, Dr. Noorul Amin Shahid and physiotherapist have led to lot of inputs about the comfort of the patients and their challenges which will be incorporated soon. The meetings were led by Dr. Lakshmi of MDCRC and Dr. Sujata, heading the team.

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WHY

Public Health to us at MDCRC is about the community at large. The health of the community at different levels and when seen through different perspectives becomes a subject which is complete, holistic and is a melting pot for a plethora of technical disciplines. At MDCRC we do align with a goal of working for community health by working on modular projects related to Women and Child health, disease prevention, Health informatics, Community building and its associated research, Water resources, Arts, Indic Sciences, Cultural issues which are relevant to the contemporary generation. The style which we adopt is to focus on totally neglected aspects and form a working model towards a better situation. The need for this approach is to bring back the glory of humanity in general and which percolates to a healthier India.

The disorders in current focus are Orphan disorders, meaning disorders whose numbers are said to be less (in the Western diaspora) which neither doesn’t majorly impact the community’s currently used health metric nor does it provide a base for extensive drug research and its production. This view is only true until the numbers are low and also the way we look at Public health in general. There had been no concerted efforts in the domain of Orphan disorders in India. Mission of ours then, was to bring the science, the services pertaining to a particular problem statement and which thereby gives rise to an evolution of a model. This forges a way of approaching Health from a community standpoint thereby offering an impactful experience to all stake-holders. This is where the core culture MDCRC comes in where we believe that in Public Health domain in particular, the science and the associated services need to reach mankind at large without a number bias or number crunching.

With a background in Biochemistry and Genetics, Dr. Lakshmi, in 2006 had started working on genetic disorders with specific emphasis on community building.

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