Multidisciplinary Care

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Our children affected by DMD need the right diagnosis and special professional care and medical interventions as per global recommendations. It is no longer appropriate to look on DMD as a condition that is inevitably fatal in childhood as the majority can now be expected to reach adulthood with proper care and love. The experts stress that the best management of DMD requires a multidisciplinary approach, with the input of specialists from different areas of care and intervention. An appropriate multi-disciplinary approach for management of these children includes the services of many clinical specialist doctors, lab facilities and specialized equipment like spirometer, Echo cardiogram and Electro cardiogram machines, care givers and rehab specialists.

With the release of the final recommendations from Centre for disease control (CDC, USA) and Treat-NMD on Standards of care for DMD affected children, MDCRC have been conducting Multidisciplinary care camps for kids with Duchenne Muscular Dystrophy and Becker Muscular Dystrophy for this purpose.

1. Diagnosis and Management of Duchenne Muscular Dystrophy – part I
2. Diagnosis and Management of Duchenne Muscular Dystrophy – part II

MDCRC handles children in five stages, Presymptomatic, Early ambulatory, late ambulatory, early non-ambulatory and late non-ambulatory. In these clinics, the parents register and give their consent for the examination. This is followed by lab investigations, ECG, X-Ray chest & Spine, Pulmonary Function Tests and clinical examination by the specialist panel of doctors with appropriate advice as per international guidelines with the expertise of the doctors for our Indian children.

Complete team with Paediatricians, Neurologists, Orthopedicians, Rehab specialists, Physiatrists, Pulmonologists, GI, Nutrition and the Diagnostic team has been formed. Evaluation forms were prepared by the team as per CDC USA & Treat NMD International Guidelines. MD Care camps are conducted on Saturdays at MDCRC.

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WHY

Public Health to us at MDCRC is about the community at large. The health of the community at different levels and when seen through different perspectives becomes a subject which is complete, holistic and is a melting pot for a plethora of technical disciplines. At MDCRC we do align with a goal of working for community health by working on modular projects related to Women and Child health, disease prevention, Health informatics, Community building and its associated research, Water resources, Arts, Indic Sciences, Cultural issues which are relevant to the contemporary generation. The style which we adopt is to focus on totally neglected aspects and form a working model towards a better situation. The need for this approach is to bring back the glory of humanity in general and which percolates to a healthier India.

The disorders in current focus are Orphan disorders, meaning disorders whose numbers are said to be less (in the Western diaspora) which neither doesn’t majorly impact the community’s currently used health metric nor does it provide a base for extensive drug research and its production. This view is only true until the numbers are low and also the way we look at Public health in general. There had been no concerted efforts in the domain of Orphan disorders in India. Mission of ours then, was to bring the science, the services pertaining to a particular problem statement and which thereby gives rise to an evolution of a model. This forges a way of approaching Health from a community standpoint thereby offering an impactful experience to all stake-holders. This is where the core culture MDCRC comes in where we believe that in Public Health domain in particular, the science and the associated services need to reach mankind at large without a number bias or number crunching.

With a background in Biochemistry and Genetics, Dr. Lakshmi, in 2006 had started working on genetic disorders with specific emphasis on community building.

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