Family Support

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Parents Meet

MDCRC conducts parents meet on a quarterly basis for the families with affected children. The experts from the MD community are invited to talk on the status of research for Duchenne Muscular Dystrophy(DMD) followed by interactive sessions with the parents which would be highly beneficial for them.

Fun Events For Kids

Apart from its routine technical services, MDCRC conducts fun weekends for children with the inspiration drawn from MDA, USA camps. This fun outing gives the children an unmatched opportunity to develop lifelong friendships, share interests, build self-esteem and carry back cherished memories, making our approach holistic. Fun weekends have been conducted by MDCRC for the past 3 years. These joyous days are filled with sessions for children such as origami, painting competitions, car race, music and dance, magic shows, mimicry etc. MDCRC also conducted a kite flying event in association with the Kite Life Foundation, Kerala in 2012. Children were shown how to design, make and fly their own kites.

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Mobility Assistance

MDCRC has collaborated with Rotary Coimbatore Manchester to donate customized wheelchairs to children who need them. Wheelchairs are essential for children with restricted mobility to enhance their lives by making them more mobile and prevent injuries. It allows these children to mobilize and function normally in the society. It also avoids parent’s trouble of physically carrying their children from place to place. A total of 48 children have received wheelchairs in the year 2011 and 2012.

We also help children receive disability cards and disability benefits from the Government.

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WHY

Public Health to us at MDCRC is about the community at large. The health of the community at different levels and when seen through different perspectives becomes a subject which is complete, holistic and is a melting pot for a plethora of technical disciplines. At MDCRC we do align with a goal of working for community health by working on modular projects related to Women and Child health, disease prevention, Health informatics, Community building and its associated research, Water resources, Arts, Indic Sciences, Cultural issues which are relevant to the contemporary generation. The style which we adopt is to focus on totally neglected aspects and form a working model towards a better situation. The need for this approach is to bring back the glory of humanity in general and which percolates to a healthier India.

The disorders in current focus are Orphan disorders, meaning disorders whose numbers are said to be less (in the Western diaspora) which neither doesn’t majorly impact the community’s currently used health metric nor does it provide a base for extensive drug research and its production. This view is only true until the numbers are low and also the way we look at Public health in general. There had been no concerted efforts in the domain of Orphan disorders in India. Mission of ours then, was to bring the science, the services pertaining to a particular problem statement and which thereby gives rise to an evolution of a model. This forges a way of approaching Health from a community standpoint thereby offering an impactful experience to all stake-holders. This is where the core culture MDCRC comes in where we believe that in Public Health domain in particular, the science and the associated services need to reach mankind at large without a number bias or number crunching.

With a background in Biochemistry and Genetics, Dr. Lakshmi, in 2006 had started working on genetic disorders with specific emphasis on community building.

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